Resources

 

There's a lot of information out there. We hope to address many of your concerns in the blog, but if we haven't addressed your specific concern (yet), please see below for sites and organizations that can help:

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Read

listen

Advocacy organizations

Health insurance and government agencies 

Research centers 

Patient assistance

Other

Events

* We may list some past events to inform readers that they happened and to encourage you to investigate highlights and outcomes of those events.

 

Have a suggestion or looking for something specific? Let us know here